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11 Jun 2007 05:40 PM

Megan update

oh she either has prader willie or anglemans, they found the deletion on chromsome 15. I will look how retts is dignosed though, thanks

26 May 2007 04:42 PM

Megan update

well I have already called our sated agency that handles Megan type of problems.

26 May 2007 07:16 AM

Megan update

Megn had her appoinmnet with the genetists on Thursday. This is what they know for sure. Megan tested postive for eith prader-willie or Angelman symdromes.

23 May 2007 01:19 PM

Megans MRI,EEG and other test results

yes she is already in PT and OT its been almost three months now. I have have to go through the regional center for more services if the octcome it really bad.

20 May 2007 06:17 PM

Megans MRI,EEG and other test results

well this week was a very busy week with Megan. She had her MRI and EEG on Monday both were normal, but after talking with the doctor he did say the her eye rolling wnd muscles twitches are sizures.

30 Apr 2007 05:39 PM

Megan's neurology appinment

well Megan saw the neurologist Friday. First off I need to call her doctor get a referral for a hearing test. still waiting to hear from the speech department. Megan will need a MRI and an EEG.

17 Apr 2007 03:20 PM

Want to introduce myself

It sounds like she may be seizing, but do not quote me on that please.... Carlee is 3 1/2 now. She was almost 11 months before she sat alone and unsupported was over a year.

17 Apr 2007 02:58 PM

Want to introduce myself

Carlee has Epilepsy, cyst on the back of her brain (nonsymptomatic), dev delay, speech impaired, autistic behaviors/tendencies, Sensory Processing Disorder, Texture/Oral Aversion, and Dysphagia.

17 Apr 2007 02:32 PM

Want to introduce myself

Welcome Laurie!! I have been awaiting your post. My Carlee has a few neurological dx's and did alot of what your Megan does. You should request a referral to a GI and ask for a swallow study.

17 Apr 2007 12:49 PM

Want to introduce myself

istn's this the special needs formum/. Laurie