yemmas's commentsComments On: EverythingArticles Blogs Journals Photos created by: Everyoneyemmas Our Family's Experience with Diabetic Ketoacidosis (DKA) Part 2 - Blog Entry30 Apr 2008 12:48 PM I am glad it has been the kick in the pants he has needed. Hopefully it will be a long lasting lesson. They took Khy by ambulance to another hospital when he was in DKA also. It is very very serious when their ketones and sugars are that high/large. Think Coma. I am sorry you had to wait so long for a room! I just read an article on lifescript.com about a Vanderbilt Universit Study. Type 2 Diabetic Teens Prone to Poor Self-Care Wednesday, April 30, 2008 here is the link http://www.lifescript.com/channels/healthy_living/Health_Conditions/type_2_diabetic_teens_prone_to_poor_self-care.asp?utm_campaign=2008-04-30&utm_source=living-with-diabetes&utm_medium=email&utm_content=tip-of-day_type-2-diabetic-teens-prone-t&VID=10852&FromNL=1 Type 2 kids are obviously not the only ones we need to thinking about. ;0) Ammey Our Family's Experience with Diabetic Ketoacidosis (DKA) Part 1 - Blog Entry16 Apr 2008 10:18 PM Just want you to know that we had a discussion today, a long one at the diabetes clinic about a similar issue. My 15 yr old has been bolusing less insulin, unknown to me until today. He admitted he is afraid of having a low. At least we figured out why he was having eratic blood sugars. It must be so tough for them, especially when they don't feel as bad with a high of 300-500 until they get into DKA. Low BGs are in your face, when its hapening. The symptoms are sudden and scary. I hope you guys got this worked out. My prayers go out to you and your son. Do You Have BOTH Juvenile Diabetes and Autism in Your Family? - Blog Entry11 Mar 2008 12:04 PM Just wanted to drop by, I found an interesting article on Vitamin D, where they mention a possible role in Type I Diabetes. You can find a link to the article here, on my blog www.beingammey.wordpress.com. The entry is Vitamin D. Gestational Diabetes: Causes & Diagnosis - Blog Entry09 Nov 2007 12:17 PM Good article. I was not overweight when I was pregnant or before, was active, ate a very balanced diet and still developed Gestational Diabetes. Now my son has Type I Diabetes. Many of the other women in my Drs Office who also had Gestational Diabetes, were not overweight either. There are more likely factors that contribute to developing Gestational Diabetes as previously mentioned in this blog. The pregnant womans response to the increased demand for insulin during pregnancy is sometimes faulty, or just plain not enough for mommy too. Weight, exercise and diet do however play a larger role in developing Type 2 Diabetes. It is always best when pregnant (or not) to maintain a healthy weight, eat right and exercise but sometimes your body has a mind of its own. Autism, Juvenile Diabetes, and Autoimmune Factors - Blog Entry09 Nov 2007 09:09 AM Great information Kristyn. Thank you for keeping the topic going, Ammey Kohen Do You Have BOTH Juvenile Diabetes and Autism in Your Family? - Blog Entry09 Nov 2007 08:40 AM Hi Donna, I know it is so overwhelming right now. There are very unique issues when your child with Autism (especially if they are non verbal), has a life threatening medical condition like Type I Diabetes. Will they show signs when they get a low, communicate it to you somehow? Wil you pick up on the clues? Is he gonna just drop to the floor everytime he has a crazy blood sugar level? Will I remember to check his BG all the time? What if I forget his supplies? I had all those thoughts, and still do to be honest. I just wanted you to know that you are not alone. The first few months are overwhelming for parents of neurotypical children even. So, you do have a lot to take on, with two children with Autism & needing to develop all the Diabetes routines. It will become second nature after a little while, so it wont always feel this overwhelming. My son who has Autism and Type I Diabetes is moderately verbal however does not communicate very much. He does not tell us when he feels ill or is in pain, even when his blood sugar was 889. We have had some scares, and he cannot manage his blood sugars at all by himself. It is challenging to manage his blood sugars, due to his Autism related issues. We do not let our guard down, ever. I also have 2 boys affected by Autism Spectrum Disorders, which is twice as challenging. Now you have another load to carry, Type I Diabetes. I used to live in CA (now we live in TN) where my son was a client of a Regional Center. We had to change his type of Respite to Nursing Respite because of the Diabetes, but that helped a lot to have a break where I didn't have to be thinking about his BG Level every second. I don't know which State you live in, but I would be glad to help you find resources if you want. No problem. You can also check out my site at [URL="http://web.mac.com/amkohen/iWeb/Doya%20Creative/Welcome.html"]http://web.mac.com/amkohen/iWeb/Doya%20Creative/Welcome.html[/URL] I have a lot of stuff on there that might make you laugh, smile, or cry? Depending on what you read. You can read the blog entry at the link below to learn more about my son. [URL="http://special-needs.families.com/blog/my-son-has-juvenile-diabetes-and-autism-a-mothers-interview"]http://special-needs.families.com/blog/my-son-has-juvenile-diabetes-and-autism-a-mothers-interview[/URL] If you need anything, my email is [email]amkohen@mac.com[/email]. [U]Anything[/U] you need just ask. Take care, Ammey Do You Have BOTH Juvenile Diabetes and Autism in Your Family? - Blog Entry04 Oct 2007 08:26 PM Your welcome. I can say in my own experience (with my now 14 year old), that the Autism affects my sons living skills, ADL. Self Care is an ongoing issue, and I can see this is where having Insulin Dependent Diabetes AND Autism will affect his independence as an adult down the road. On the other hand, due to Autism, my son naturally creates routines, some time consuming. This has actually helped him cope with the Diabetes in a strange way. The unpredictable low/high blood sugars upset him but generally speaking he thrives with all of the routine daily BG checks, shots, etc. He is on the Pump now and that has helped cut down on some time consuming rituals he had started with the multiple daily injections. Lining up the alcohol swabs, clipping the needle. Every step was slowly drawn out. When he was 12 he still had to be held down by several nurses to even get a blood draw, and he doesn't even wince now with shots, or infusion sets. For my son at least, it has its challenges but overall, we are coping with the two diagnosis positively. We just work really hard with helping him to learn to manage his Diabetes as independently as possible. Which I think is a challenge with any kid!! I haven't found a support group for Autism & Type I Diabetes, but I think it would be so helpful because the Autism affects how well you can manage a potentially life threatening illness like Juvenile Diabetes. My son has communication defecits, so we are always on guard and checking for physical signs of high blood sugars because he may not tell us when he feels sick. When he is low, we can tell, and so can he. It freaks him out so he is pretty good about getting help with a low. I feel like I am still in the hard times to be honest. Having so many medical challenges to deal with, and the meltdowns too, is so exhausting sometimes. I cope with it by connecting with others and by putting my energy into being a resource finatic. Learning as much as I can about the challenges we are facing continues to be a source of empowerment for me. Do You Have BOTH Juvenile Diabetes and Autism in Your Family? - Blog Entry27 Sep 2007 07:44 AM Hi Kristyn, Your childrens books look very cool by the way. I can put a link to your site or books, on my site if you want. I do feel there is a connection and would like to see a Genetics Dr eventually. All 3 of my children have autoimmmune disorders, and I can trace it back to myself, and then my mom and dad who have similar medical problems. In our family...including myself, my husband, 2 sons (ages 14 & 10) and my liitle girl (age 4) we have recieved the following diagnosis, and I probably left some out. For myself, I feel there has to be a more simple diagnosis than having so many diagnosis. I am still tyring to sort out problems with my Autonomic Nervous system, and heart. The Dr said it is likely due to MS, but regardless, of which disorder/disease its caused by, we know there is an underlying autoimmune factor. Multiple Sclerosis Allergies Normal Tension Glaucoma or Recurring Optic Neuritis Type I Diabetes Asthma Eczema Narcolepsy Autism Sensory Integration Dysfunction Arthritis Attention Defecit Disorder (Inattentive Type) Degenerative Disk Disease (in a young person, requiring 2 surgeries) Dysautonomia causing severe drops in blood pressure Anemia, unexplained Ureteral Reflux GI Reflux C Difficile Infection (HORRIBLE) and Chronic Migraines It's a lot to cope with. I found a website and posted a similar topic there before I found your blog article. The link is http://www.ch3nutrigenomics.com/phpBB2/index.php?sid=30d2ba9238414cac2bd8d46f71313d3a I have gotten a few responses, two from Dr. Amy who has an arsenal of information on genetics, due to her education and job experience in the field. There is much to learn, but I hope that research starts taking a closer look at these frequently co-existing health and development conditions that all seem to be connected by the bodies autoimmune response. The direct link to the thread is http://www.ch3nutrigenomics.com/phpBB2/viewtopic.php?t=13220 I think you might have to join the forum to view it, but maybe not. I don't know about the treatments with all the supplements yet, we are not currently doing it, but I am gathering a lot of information. Thanks and have a blessed day, Ammey Do You Have BOTH Juvenile Diabetes and Autism in Your Family? - Blog Entry26 Sep 2007 11:41 AM Hi, I was glad to find this thread. My son was first diagnosed with Autism, then Type I Diabetes. He also has Asthma, eczema, and severe migraines with vomitting. His brother is also on the Autism Spectrum, with a diagnosis of Narcolpesy. I have an autoimmune disorder, MS, and have other autoimmune disorders...I have been questioning the connections for awhile now, and if you want more info, you can contact me at amkohen@mac.com, or check out my website, specifically the tab Learn. laugh. Live. Thanks, Ammey http://web.mac.com/amkohen/iWeb/Let%20there%20be%20light/Welcome.html |
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